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4/13/25

 I started my morning off by sending an update to our donor family. I felt the need to share with them that Ethan’s echo looked good and there are no signs of rejection. I shared how Ethan is doing his thing and Nichole is along for the ride. They need each other and one can’t survive without the other.  Nichole’s sister wrote back saying my timing was perfect and that she was getting ready to have breakfast with family. She could share that news at breakfast. I thought that was heart warming. My back felt pretty good today. We did lots around the house to get ready to leave. Paul was washing the windows, I dusted some things. He helped me change the sheets on a few beds. I organized Avery’s bedroom, which has been needed for several months. I put things in boxes and labeled them. That took up the majority of my morning.  Ethan has his 12:00 therapy appointment tomorrow and his 1:15 ultrasound appointment. We are starting the week off strong for appointments. I have a gut...
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4/12/25

 I think Paul’s way of getting back at all the tricks is to pack his own bag. I made him a list of what he should bring so that it didn’t get out of control. We will have a washer and dryer. Once he has these things, he can decide if he feels like he needs more. The list was simple. He spent about an hour “packing” which consisted of him showing me shirts that he still had from 20 years ago that had holes in them. With me asking the same question “Why do you still have that?” Or “Are you ever going to wear it?” And “Throw that away!”. He knew it was mildly annoying me but we laughed through it. I was busy getting my things together with a similar short list. I can utilize every inch of the carryon to make sure we can bring it all.  Paul finishes packing and leaves to go about his Saturday. I went over to his clothes packed and start going through them. I have learned I need to do this. Here is what I found: No underwear. (Wrong!), 2 bathing suits (correct), PJ bottoms (correct...

4/11/25

 I go from having mild sciatic pain, to moderate, to none, and to just knotted muscles in my back. Today I had physical therapy at 7 am.  My physical therapist did some work with trying to stretch, exercise, heat and cool the proper areas. She used a special kind of salve to help loosen achey muscles.  My physical therapist did a piriformis release on me. Sounds kinky but was NOT! This is to try to loosen the piriformis muscle which seems to be my biggest problem this week. This is located in the deep butt cheek area. If it gets tight, it can put pressure on my sciatic nerve which seems to be the issue… It was pure torture. She has done this before. She uses her elbow to put direct pressure on my butt cheek. It is VERY painful.  As she was performing this assault (being dramatic) I could barely breathe. I had to ask her to stop a couple times so that I could catch my breath.  Noises escaped me like a dying dinosaur would make. Not embarrassing at all. When she w...

4/10/25

 The back pain fluctuates between shooting down my leg (nerve) and aching at the base of my spine like tight muscles. So that is a fun little thing happening for me. I had a great chat with Avery this morning. She was cracking me up. We chatted for a bit, nothing exciting. I needed her help with a PowerPoint presentation I was doing. She helped excellently.  We did a little PowerPoint presentation for one of the girls on our team. She is moving to a different team. I collected a word or phrase from each team member. How would they describe her? I took that and turned it into word art. This person shared their celebrity crush as a teen, so I made a collage of pictures with many pictures of said celebrity. I wrote a poem for her. The best idea I had I was unable to fulfill. My kids still have their blasted recorders in the basement. I wanted to punk the whole team. I wanted to see their faces when I told them that I wrote a farewell song and wanted to play it. I wanted to turn o...

4/9/25

 Today’s agenda included a full day’s work, a jaunt to Avery’s presentation for Scholar’s day, a meeting with the nephrologist and a doctor’s appointment for myself to discuss a travel plan for my back. Thank goodness for virtual visits. My in-laws met me at our house. I took them on a scenic drive through the Brockport College campus. I pointed out the places Avery takes classes, where she has lived on campus and where her townhouse was when she worked her externship last year. We ended up at the SERC which is where the event was. It was from Noon until 2, come and go as you please. I had enough time to find Avery’s poster and release the I laws into the event while I went off to have a quiet phone call with Ethan’s nephrologist. I found a semi quiet place to chat.  Luckily Ethan’s immunology tests came back what is considered normal. The next step is to evaluate the blood flow to the kidney, then another biopsy. They detected slightly more scarring on last year’s biopsy comp...

4/8/25

 Wow! I got my butt handed to me on a silver platter on Monday. I was bloated, nauseous all morning. I made it through my marathon of meetings. I cut one meeting short to lay down. A wave of nausea came over me and that was it. At one point, everything inside my body was fighting to get on the outside. It was a brutal attack. I was being bullied by my intestines. And things were vacating from any place they could find. At one point I had to stand up quickly to vomit and had a sheering pain in my back. That did NOT feel good. It radiated down my leg. I think I blew out another disc vomiting so hard. It was NOT lady like. I had periods of weakness and having my vision go dark from low blood pressure. I could feel the wave of unconsciousness trying to call me, but luckily I would lay down and there were no falls. Yay. The night was horrible. My back was throbbing and I could barely stand. Ethan came in to the bedroom and asked me if I needed a ride to urgent care. “I just want to die ...